Revised Western Australian Advance Health Directive Consultation Survey

Closed 4 Sep 2020

Opened 27 Jul 2020

Feedback updated 18 Mar 2021

We asked

In 2020, the WA Health End-of-Life Care Program sought feedback on the revision of the WA Advance Health Directive (AHD) template. The consultation consisted of 2 phases:

  • an initial broad consultation phase in August 2020 to seek feedback on proposed content to help shape a draft template
    • included a survey and a series of open invitation face-to-face workshops, regional videoconference consultations, and targeted workshops with key clinicians as well as priority populations including people with mental illness, Aboriginal people, people with disability and people from culturally and linguistically diverse backgrounds.   
  • a road-testing phase in October/November 2020 to gather comments on the usability of the draft template
    • included a survey and 3 face-to-face workshops.

All members of the WA community were encouraged to have their say, with the invitation to participate circulated amongst a broad range of stakeholders including consumers and carers, community organisations, Government departments/areas, health and allied health professionals, health and legal services, and aged care providers.

You said

In total, 295 survey responses were received, and 217 people participated in workshops. Extensive feedback was received including useful suggestions on how to ensure the revised AHD better meets the needs of the community and health professionals: Key themes included:

  • support for the inclusion of a value statement and including the value statement at the beginning of the AHD to allow the individual to consider what is important to them before making their treatment decisions
  • finding a balance between keeping the form as short as possible whilst also including enough guidance and detail within the questions so people are clear on how to complete it
  • need for examples and a clear guidance document to support individuals to complete the AHD
  • importance of being able to express the circumstances in which certain treatment decisions apply
  • the wording of the form should be simple, clear and in plain English
  • overall the majority of respondents felt the proposed changes are an improvement on the current form which can be considered as too vague and open-ended.

We did

The feedback was utilised to develop a final draft AHD template that was reviewed and refined by a working group comprised of WA Health stakeholders, key clinicians, consumers, and Office of the Public Advocate and Department of Justice representatives.

It is anticipated that WA Health will submit the finalised draft AHD template to the Department of Justice in April 2021. Once the Department of Justice have approved the final draft, they will proceed with drafting amendments to the Guardianship and Administration Act Regulations 2005 to incorporate changes to the prescribed AHD form. The revised AHD will be launched and promoted to the community once available.

Overview

An Advance Health Directive (AHD) is a legal document in which an individual may indicate whether they consent or refuse particular medical treatments in particular circumstances. More information on the current Western Australian (WA) AHD template is available for background information.

The draft revised WA AHD template is being developed by the End of Life Care (EOLC) Program within the WA Department of Health.

The revised AHD is being developed following recommendations from the Ministerial Expert Panel on Advance Health Directives: Final Report (August 2019) and aims to enable Western Australians to more effectively engage in advance care planning. 

Why we are consulting

The EOLC Program is seeking input into the development of the revised AHD via the completion of a survey. The survey seeks to gather your input on the content to be included in the AHD.

We encourage all members of the WA community to have their say by completing this online survey. In particular, we are seeking input from people who have completed or are considering completing an AHD, and health professionals who assist their patients and clients in the completion of an AHD.

The information collected by this survey will inform and guide the development of the revised template and support its implementation across WA. 

The EOLC Program will also be hosting interactive face-to-face and video-based consultation workshops to gather stakeholder feedback on the development of the revised template. Please visit health.wa.gov.au/AHDconsult for further information about these events.

If you are not familiar with advance care planning or AHDs, we encourage you to find out more about this topic by reading the information in the links on the AHD consultation home page.

The survey is expected to take approximately 20 minutes to complete.

All responses to this survey are anonymous and will remain confidential.

There is an opportunity for you to provide general or specific feedback about the revised AHD template at the end of the survey if you wish.

You may exit the survey at any time and can save your progress by providing your email address. Please note that your results will not be submitted, if you do not press "submit" at the end of the survey. 

To begin the survey, click on the 'Online Survey' link below.

If you have any queries, please email the EOLC Program at acp@health.wa.gov.au or phone 9222 2300.

Audiences

  • Students
  • WA Health services and staff
  • State government agencies
  • Non-government organisations
  • Peak bodies and associations
  • Local governments
  • Research institutions
  • Universities
  • Contracted service providers
  • Aboriginal health
  • Health professionals
  • Health workforce
  • Primary Care
  • Researchers
  • Policy
  • Planning
  • Consumers
  • Carers
  • Health Service Providers
  • WA Health

Interests

  • Feedback